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Thursday, December 29, 2005:

Sorry to be so long in getting an update on here. Life has actually felt a little normal these last few days!

We had a good Christmas weekend and I will write more about that later. I am at work right now so I am going to make this one short just to get the latest to you all.

Zack and Ginner went to clinic on Tuesday and all they did was his blood counts and he got platelets. He goes back tomorrow morning for the next set of blood counts and any blood products he will need. They pre ordered red cells for him just incase he would need them to try and help get him in and out faster. Platelets only take about a half hour to go in but red cells are one hour a bag and they usually give him two bags, so it makes for a long visit. Anther thing that helped the time go faster for them was a portable DVD player that I got for Christmas. They said that watching a movie made the time go faster.

Zack has been having a good time visiting and catching up with friends who are home from college. Plus he has been to Cabela’s once so far and has a few more visits planed (world’s foremost outfitter of hunting, fishing, & outdoor gear as their web sight says). He has also shot his shot gun and plans on doing that some more today (if the rain stops).

Ginner and Charlotte are in D.C. at a Campus Crusade Christmas conference now so the house is quiet.

Friday, December 23:

Today Zack and I headed into Philly for his appointment with Dr. Luger. His blood counts are going up slowly and he only needed to get platelets today. Next week he will go back on Tuesday and Friday to have his blood work done and then get platelets. His next appointment with Dr. Luger will be on January 3rd and in the meantime they are scheduling a CAT scan to be done mid January to check on his phenomena. Once she sees his CAT scan she will decide when to do the next bone marrow test to see how much leukemia there is still. Right now his counts are still low enough that if a test was done now they would not be able to tell anything from it.

He still tires easily and adjusting to being home. Each day though he can do a little more. Wednesday he went to a movie with his sister’s (in the afternoon when it is empty) and it is good to see him get out. Thursday he came to our office Christmas lunch and had company in the evening. Keeping busy is good but he still needs to get some rest since his body has to recover and get strong. He still isn’t sleeping too well yet.

Tuesday, December 20th:

Not much happened today besides having to go to Reading Hospital to have blood work done. The rest of the day Zack rested. Later in the evening we were all in the front room talking and laughing. It is nice to have these times when we are all together since it does not happen too often right now. Plus it is good to be laughing together instead of crying!

To Dave Stoltzfus’ small group from church – THANK YOU. You made him one happy guy! I had to listen about him wanting this gun (Remington Model 870 Express) for months, but of course I did not remember what brand it was, except that it’s a shot gun and that he needs it to be able to hunt in PA.
Thank you very much! Now he can think about the next gun he wants and a gun safe to put them in . It’s a guy thing.

His appointment with Dr. Luger has been changed to Friday now. We don’t know if she is planning on doing a bone marrow test that day or not. As far as we know it is just for her to be able to check on him and see how he is doing.

Monday, December 19, 2005:

Zack called this morning and told us they wanted to get him out of the hospital by noon if possible, so Ginner and I headed in. The fun part right now is trying to get a parking spot in the garage. For some reason lately it has been harder and we end up following people to their cars as they leave .

Zack was sleeping when we got to his room. He had already gotten palettes and they were waiting for one bag of blood to come up to give him and then we could head home. Ginner and I packed up his room and took two loads to the car and then we were ready to take him. Vicki
& Dr. Tsai went over what Zack can and can’t do and what would bring him back in.

Dr. Tsai said for him to go home, rest, walk and eat, a lot. The goal is to get him rested and his strength back to be able to face the next phase. Zack’s ANC is low right now still and that needs to come up of course. The last number we had was 31, so it had dropped down from 65,
which isn’t uncommon for it to go up and down at first and then at some point it should climb steadily.

Once he was done getting the blood and his IV medicine we did a last check around the room and headed out. After a lot of hugs and good byes to the nurses and staff we were on our way to the garage. It is hard to leave them. They mean so much to us for all they have done and how much they care.

We got home around 5 pm and it wasn’t long before Zack was on the couch sleeping again. Everyone headed out to get some errands done before dinner so I got everything unpacked while Zack still slept. Then Kelly brought us dinner (Thanks!) and we all sat down to have
dinner togther. That was nice and a lot of laughter also. We had a good evening.

Tuesday morning: These first few days are a big adjustment for us all, especially for Zack. He did not sleep too well last night. Maybe if we go in every 4 hours to take his temperature and blood pressure it would help . We are getting ready to head into the Reading Hospital for blood work to be done. The visiting nurse could not come today so we need to go there so that they can get the counts done today and faxed to Dr. Luger. Then Thursday we head back to Penn Towers for a visit with Dr. Luger.

Prayer:

*That Zack would be able to sleep at night and the adjustment to being home would go smoothly for him.

*For strength to face whatever is coming next.

*That Zack’s ANC would start to rise and get stronger so his body can fight infections.

Note: Some of you have said that we had not mentioned that Zack had pneumonia before. It is a “fungal” pneumonia that they have been watching since his first stay in the hospital. In some of the early chest x-rays and CAT scans Zack had back in August and September they could see some small spots but they were so small they did not think they were a problem at that time (though they still treat it to keep it in check). Then during this hospital stay and after his 4th round of chemo one of the tests showed that the fungal pneumonia had grown and so they started treating it. Instead of an antibiotic they have “antifungal” medications (I had never heard of this before). The first one, and the best one they have, gave Zack bad side effects when they tried it during the first stay and he had to change to a different one after a few days. So, this time they did not try it and went with a different one. The second one also gave him side effects, but not like the other drug. After a few weeks of trying that and it not seeming to make any difference on the pneumonia they decided to try the first one again and see if Zack would have the side effects again. Ok, after that long explanation, it ended up that he has tolerated it well and they think that the side effects were because of the combination of the antifungal and another drug Zack was taking at that time (1st hospital stay). The pneumonia has gotten better but it will not completely go away until his body can fight it along with the drug.

It’s Sunday evening and we have had an eventful week. The big news is
that Zack is coming home tomorrow! What an answer to prayer! A week
ago we thought there was no way that he could get home in time for
Christmas. We feel very blessed. “Our soul waits for the Lord; He is
our help and our shield. For our heart rejoices in Him, because we
trust in His holy name.” (Psalm 33:20, 21)

Zack has been feeling pretty good the past several days except for
tiring very easily. He now has the PIC line in his right arm and it is
still pretty sore, but otherwise he is feeling stronger.

The doctors aren’t telling us how long he will be home. The goal is for
him to get out of the hospital (he’s been in since Oct. 24), spend some
time at home, regain his strength, and hopefully get rid of the
pneumonia (the only remaining infection). At some point soon he will
have another bone marrow test and that will let the doctors know the
status of the leukemia. We don’t know how long he will be home, but we
do know that if he gets sick (i.e. fevers or other infections) he will
need to go right back in.

We expect the transition from hospital to home to take several days.
Zack will still be on several antibiotics and will probably need red
blood and platelet transfusions every few days. Since he will be
neutropenic (sp?), he will be mostly confined to home and will not be
able to be around anyone who is not healthy.

Guidelines for visiting:

1.Please call first (610 286 6757) before visiting. We expect him to be quite tired the first several days at home. We need to make sure he doesn’t get too worn out.
2.Please do not come if you are not completely healthy since his immune system is very low.

Our prayer requests:

1.That there would be no complications in bringing Zack home and that the transition would go smoothly
2.That he would stay infection free and that his immune system would come back quickly
3.That he would regain strength quickly
4.That he would have good visits with friends and family
5.That God would be especially close to the others on his floor who are in the hospital over the holidays